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June 2010

Learn. Support. Share. Connect.
Join the hundreds of patients, family members and friends who are learning, supporting, sharing and communicating through ABTA's new social networking site, Connections.
Learn more.
 

Meet, Follow and Support ABTA's 
Chicago Marathon Team. Read more.

ABTA June-July
Events:

Through July 31, 2010
Illinois to Alaska

Howard's Motorcycle Ride to Alaska

June 12-June 13, 2010
Conovor, Wis.
6th Annual Callie Rohr Canoe Race
 
June 19, 2010
Greendale, Wis.
Greendale Community Charity Walk
 
June 19, 2010
Watertown, N.Y.
3rd Annual Trainham Golf Outing
 
June 26, 2010
Seattle, Wash.
Seattle Rock 'n' Roll Half Marathon
 
June 26, 2010
Storrs, Conn.
5th Annual Sharing Hope Walk the Walk-Talk the Talk

July 2-3, 2010
St. Thomas, Penn.
7th Annual Jeff Appleby Yard Sale

July 10, 2010
Ottawa, Ill.
2nd Annual
Peanut Run

July 24, 2010
Macomb, Mich
.
13th Annual Paul Brazen Golf Outing

July 25, 2010
Leesport, Penn.
2nd Annual Following the Footsteps

July 30-August 15, 2010
Chicago to Colo.
Bike 2 the Pike

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Joel GingrasThe 2010 ABTA Spring Appeal:
Inspire Your Own Extraordinary Legacy
Joel Anthony Gingras, Jr. inspired everyone he knew with his love of life. In 1988, at the age of 27, he fought and lost a fierce brain tumor battle. His family and friends transformed their grief into joyful celebration of the life of their cherished son, brother and friend by establishing the Joel A. Gingras, Jr. (JAG) Fund. In just 10 years, the JAG Fund has raised more than $1 million. Please check your mailbox for the ABTA 2010 Spring Annual Appeal, and create your own extraordinary legacy.  Learn more. 

Thank You Path to Progress Participants!Path to Progress
Many thanks to the nearly 6,000 runners, walkers, strutters, volunteers, and supporters who made the 2010 Path to Progress our largest and most successful yet! Learn how you can support the 302 Path to Progress teams, check race results, and/or access team photos.  If you still have donations in the form of a check, please send them via certified mail to ABTA. Questions? Contact the ABTA Events Team at pathtoprogress@abta.org, or 800-886-1281.

ABTA: Representing Brain Tumor Patient Interests Throughout the U.S. and Canada
American Brain Tumor Association board members and staff regularly travel throughout North America to represent brain tumor patients at various meetings and conferences. During the month of May:

  • Claudette Yasell, Vice President ABTA Board of Directors; Elizabeth Wilson, ABTA Executive Director; and Deneen Hesser, ABTA Director of Research and Patient Services visited the National Institutes of Health in Washington, D.C. to participate in a molecular neuroimaging symposium.
  • Deneen Hesser attended the 14th Biennial Canadian Neuro-Oncology Meeting. The program included the American Brain Tumor Association Lecture - an overview of new and evolving trends in the treatment of adult and pediatric gliomas.
  • Social Worker Natalie Lucchesi welcomed patients, family members and caregivers to the 2nd Annual Brain Cancer Symposium at The Gathering Place in Cleveland, Ohio.
  • Social Worker Jillann Demes attended the 25th annual meeting of the Association of Social Workers in Phoenix, Arizona. Demes, a member of the Board of Oncology Social Work Certification, led the Brain Tumor Special Interest Group discussion.

Anne and teamFollow Anne Feeley and Brains on Bikes
Glioblastoma survivor Anne Feeley continues her cross-country bike journey to raise brain tumor awareness, and funding for ABTA and other organizations. To date, Anne has ridden more than 2,100 miles. Follow Anne on her journey through the Brains on Bikes Interactive Map (click on "Our Journey"). Brains on Bikes is scheduled to end on July 17, 2010 with a celebration in Washington D.C.

Interested in hosting an ABTA Event?
Call us at 1.800.886.1281

Patient Care and Support

ABTA-Supported Research: Caregivers Play Key Role in Conveying Patient Well-Being
New research funded by the American Brain Tumor Association and conducted by the Northwestern University Feinberg School of Medicine, found that malignant glioma patients often minimize their symptoms, and that caretakers can play an important role in assessing and conveying true patient status to doctors and health care staff. Read more

Yoga Can Improve Sleep and Life Quality for Cancer Survivorsnull
A four-week yoga regimen, designed specifically for cancer survivors, helped patients sleep better, experience less fatigue, and enjoy improved life quality. The study involved 410 cancer survivors who reported sleep problems between two and 24 months after completeing cancer treatment. Read a news release on the study from the University of Rochester Medical Center. Read an article on the benefits of yoga and other integrative therapies in the current issue of Headlines.

Parents of Children with Cancer More Likely to Suffer Extreme Stress
Hospital appointments, invasive procedures and uncertainty can combine to cause severe stress in parents of children with cancer, according to a new study. Researchers interviewed parents of children with cancer and brain tumors, and those of healthy children, about stress, life quality, family characteristics, health behaviors, life events, family functioning and social support. Parents of pediatric cancer and brain tumor patients were more likely to smoke, less likely to exercise regularly, and had worse sleep quality compared to parents of healthy children. The findings suggest that helping parents of children with cancer to prevent, manage and reduce their stress, can improve parent and child life quality. Read a news release on the research from the University of Wisconsin School of Medicine and Public Health. Read a summary of the research in the May 15, 2010 journal Quality of Life Research. Read more about childhood brain tumors at the ABTA Web site.

Nearly All Herbal Dietary Supplements Contain Contaminants
A new study from the U.S. Government Accountability Office (GAO) found that nearly all herbal supplements - chamomile, echinacea, garlic, ginkgo biloba, and ginseng - contain contaminants and some falsely claim to cure diseases, including cancer. The study sought to determine whether dietary supplements commonly used by the elderly were deceptively or questionably marketed. FDA statutes and regulations do not permit sellers to make claims that their products can treat, prevent, or cure specific diseases. However, in several cases, written sales materials for products sold through online retailers claimed that herbal dietary supplements could treat, prevent, or cure conditions such as diabetes, cancer, or cardiovascular disease. Read a summary of the GAO report. Read the full GAO report. Read more about Complementary and Alternative Medicine (CAM) from ABTA.
 

Treatment Tab

World Health Organization (WHO) Releases Cell-Phone Findings
A new international study conducted by the World Health Organization (WHO), found no increased risk for glioma or meningioma at 10 years or more after first phone use. Studies of those with the highest levels of cumulative call time and changing patterns of mobile phone use merit further consideration. Read a news release on the findings from WHO. Read the full study in the Journal of Epidemiology. Read the latest research and news articles on the cell phone debate at the ABTA Web site.

Modified Measles Virus Shows Potential to Treat Pediatric Brain Tumors
Researchers believe a modified measles virus may successfully treat childhood medulloblastoma. The study, appearing in the journal Neuro-Oncology, revealed that established medulloblastoma cell lines express the measles receptor CD46, and that medulloblastoma specimens removed from patients also have a high level of CD46 expression. When researchers treated medulloblastoma cell lines with the modified measles virus, "all cell lines exhibited significant tumor cell death." Additional research on dosage and modifications are needed to ensure optimal outcomes.  Read a news release on the research from Nationwide Children's Hospital.

Treatment News from ASCO
Earlier this week, the American Society of Clinical Oncology (ASCO) held their annual meeting. Promising brain tumor treatment research presented during the meeting included: 

Read all of the abstracts/summaries on the central nervous system tumor research presented at the ASCO meeting.

The American Brain Tumor Association funds brain tumor research and offers services to patients and family members worldwide. Help us continue these services by supporting ABTA programs. A donation can be made at http://www.abta.org/index.cfm?contentid=54.

This information is provided by the American Brain Tumor Association, 2720 River Road, Des Plaines, Illinois, 60018.

We can be reached by e-mail at info@abta.org, or by phone at 800-886-2282.

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©2010 American Brain Tumor Association

This communication is not intended as a substitute for professional medical advice and does not provide advice on treatments or conditions for individual patients. All health and treatment decisions must be made in consultation with your physician(s), utilizing your specific medical information. The links set out on this communication are provided for your convenience only. The American Brain Tumor Association does not endorse the information contained on the linked Web sites or individual(s)/companies/institutions operating these websites.