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 September 2012

Register Now for the ABTA’s Free Webinar
“Understanding Brain Tumors,” part of the ABTA’s educational webinar series, will be held on Thursday, September 27 at 11 a.m. CDT. This webinar, which will explore tumor types, symptoms and risk factors, is presented by Timothy Cloughesy, M.D., director, UCLA Neuro-Oncology & clinical professor at The Ronald Reagan Hospital at UCLA Medical Center. Click here to register. 

Comprehensive Brain Tumor Publication Now Available
Our newly revised publication, About Brain Tumors: A Primer for Patients and Caregivers, is now available for download, along with all of our single topic publications, on About Brain Tumors is an introduction to brain tumors, including tumor facts and statistics; an overview of the brain, tumor types; information on seizures; coping as a patient, caregiver or family member; and much more, including a section on pediatric brain tumors. Download About Brain Tumors here.

ABTA Now Accepting Letters of Intent for Discovery Grants
The ABTA’s Discovery Grants are one-year, $50,000 grants awarded to high-risk, high-impact projects deemed to have the potential to change current diagnostic or treatment paradigms for adult and pediatric brain tumor care. Investigators from sciences outside traditional biology fields encouraged to apply. Letters of Intent (LOI) are due October 10, 2012. Click here for LOI instructions.

Make Connections® Online
Looking for support from people who understand what you’re going through, but need it to fit into your schedule? The ABTA’s Connections online community is a resource for brain tumor patients and caregivers to support each other. Our community is growing.  Be the 1,000th member and receive a special ABTA gift bag. Click here to learn more and sign up.

Fundraising Tab

Breakthrough in New York City
Spend an incredible weekend in New York City and take part in the ABTA Breakthrough for Brain Tumors 5K Run/Walk on Sat., Nov. 10 at Hudson River Park’s Pier 84. Visit to register and learn all about this amazing event.

Move Further with Team Breakthrough in 2013
The ABTA’s endurance team, Team Breakthrough, has announced its schedule of nationwide events for 2013 – including full and half marathons, as well as a triathlon. Visit to see the full list of events.


tab research news

Defining “Complications” In Pediatric Neurosurgery
Short-term surgical outcomes are routinely used to show improvements over time or to determine the impact of different therapies on patient outcomes. However, criteria for measuring adult outcomes may not correlate to pediatric outcomes. To help improve medical care and to ensure that researchers use the same terms in defining “outcomes,” Canadian researchers developed standardized definitions of surgical complications and surgical outcomes for pediatric neurosurgery (Journal of Neurosurgery: Pediatrics, August 2012). Via group consensus, 41 definitions and 13 grading scales have been created. To read more click here.

Predicting Outcomes for Glioblastoma
An article appearing in the Journal of Neurosurgery, September 2012, explores the possible role of a protein called “neurofilament protein” (NFP) in predicting outcomes for primary glioblastomas. Researchers in France analyzed tissue from 302 newly-diagnosed adult primary supratentorial glioblastoma tumors and recorded each patient’s imaging, treatment and clinical data. About 58% of the tumors tested positive for the presence of NFP, and it appeared this subgroup did somewhat better than patients with NFP-negative tumors. The researchers concluded that NFP expression may help identify a distinct subgroup of glioblastoma with a more favorable prognosis, which may be a consideration in planning future therapies. Click here to read the abstract.

Physician Reluctance to Discuss Poor Prognosis
There are several reasons – and misbeliefs – surrounding physician hesitance to discuss prognosis with their patients. A commentary appearing in the Journal of Clinical Oncology, August 2012, explores perceptions of the emotional impact of sharing a poor prognosis, the maintenance of hope, cultural sensitivities about prognosis, the involvement of hospice and palliative care, and the emotional impact on physicians themselves. The article dispels several common beliefs, and suggests resources for facilitating these conversations. Access the entire article here.

Radiosurgery for Subtotally Resected Adult Pineocytomas

Pineocytomas are uncommon tumors that arise from the pineal gland. Because they are rare, data describing outcomes has been limited to articles reporting very small numbers of patients. Researchers in Arizona recently reviewed medical records and imaging for 14 patients with pineocytoma. They concluded that the patients with residual tumor after surgery, who were then treated with stereotactic radiosurgery, appeared to have a minimized long-term risk of tumor progression. Read more from the Journal of Neurosurgery, August 2012, here.


Founded in 1973, the American Brain Tumor Association (ABTA) was the first national nonprofit organization dedicated solely to brain tumor research. For nearly 40 years, the ABTA has been providing comprehensive resources that support the complex needs of brain tumor patients and caregivers, as well as the critical funding of research in the pursuit of breakthroughs in brain tumor diagnosis, treatment and care.

Make a donation to the American Brain Tumor Association.

This information is provided by the American Brain Tumor Association, 8550 W. Bryn Mawr Ave., Suite 550, Chicago, IL 60631. For more information about the American Brain Tumor Association, call toll-free 866-659-1030, write or visit


"American Brain Tumor Association" and "TrialConnect" are registered trademarks of the American Brain Tumor Association. The ABTA logo, the "Breakthrough for Brain Tumors" name and logo, and the "Team Breakthrough" name and logo are trademarks of the American Brain Tumor Association. All rights reserved.

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Having Fun Raising Funds

To learn more about our events visit

Pray for Gray
September 14, 2012 
Fargo, ND

St. Louis Fall Festival
September 15, 2012 
St. Louis, MO 

Cheryl Kay Race Day
September 15, 2012 
Dayton, OH 

Putt Cancer In the Hole
September 15, 2012
Seattle, WA 

Paul Fabbri Memorial Golf Classic
September 22, 2012
Wheeling, IL 

Humor to Fight the Tumor
September 22, 2012 
Minneapolis, MN

Jim Vassar Kicks Cancer
September 22, 2012
Toledo, OH 

Bill's Bears Bash to Beat Brain Tumors
September 23, 2012
Palatine, IL

2nd Annual Ron Love Walk/Run for Hope
September 29, 2012
Crawfordsville, IN 

Team Breakthrough Bank of America Chicago Marathon
October 7, 2012 

Breakthrough for Brain Tumors NYC 5K Run/Walk
November 10, 2012
New York, NY

Online Community
The ABTA's Connections links patients, families, friends, caregivers and health care professionals with each other for support and inspiration. The online community is a safe place to visit, join and interact with members of the brain tumor community nationally and around the world.

Find a Clinical Trial Through Trial Connect
The ABTA's TrialConnect, a free and confidential service administered by EmergingMed, is offered in English and Spanish. Read more.

Consultation Services
Our Care Consultants provide brain tumor information, support and education for patients, families and health care professionals. Write or call our toll-free CareLine at 800-886-ABTA (2282).


This communication is not intended as a substitute for professional medical advice and does not provide advice on treatments or conditions for individual patients. All health and treatment decisions must be made in consultation with your physician(s), utilizing your specific medical information. The links set out on this communication are provided for your convenience only. The American Brain Tumor Association does not endorse the information contained on the linked websites or individual(s)/companies/institutions operating these websites.