| September 2012
Register Now for the
ABTA’s Free Webinar
“Understanding Brain Tumors,” part of the ABTA’s educational webinar series,
will be held on Thursday, September 27 at 11 a.m. CDT. This webinar, which will
explore tumor types, symptoms and risk factors, is presented by Timothy
Cloughesy, M.D., director, UCLA Neuro-Oncology & clinical professor at The
Ronald Reagan Hospital at UCLA Medical Center. Click here to
Brain Tumor Publication Now Available
Our newly revised publication, About
Brain Tumors: A Primer for Patients and Caregivers, is now available for
download, along with all of our single topic publications, on www.abta.org. About Brain Tumors is an introduction to brain tumors, including tumor
facts and statistics; an overview of the brain, tumor types; information on
seizures; coping as a patient, caregiver or family member; and much more,
including a section on pediatric brain tumors. Download About Brain Tumors here.
ABTA Now Accepting
Letters of Intent for Discovery Grants
The ABTA’s Discovery Grants are one-year, $50,000 grants
awarded to high-risk, high-impact projects deemed to have the potential to
change current diagnostic or treatment paradigms for adult and pediatric brain
tumor care. Investigators from sciences outside traditional biology fields
encouraged to apply. Letters of Intent (LOI) are due October 10,
here for LOI instructions.
Make Connections® Online
Looking for support from people who understand what
you’re going through, but need it to fit into your schedule? The ABTA’s
Connections online community is a resource for brain tumor patients and
caregivers to support each other. Our community is growing. Be the 1,000th member and receive a
special ABTA gift bag. Click
here to learn more and sign up.
New York City
Spend an incredible weekend in New York City and take
part in the ABTA Breakthrough for Brain Tumors 5K Run/Walk on Sat., Nov. 10 at
Hudson River Park’s Pier 84. Visit www.breakthroughforbraintumors.org
to register and learn all about this amazing event.
Move Further with
Team Breakthrough in 2013
The ABTA’s endurance team, Team Breakthrough, has
announced its schedule of nationwide events for 2013 – including full and half
marathons, as well as a triathlon. Visit www.abtateambreakthrough.org to
see the full list of events.
Defining “Complications” In Pediatric
surgical outcomes are routinely used to show improvements over time or to
determine the impact of different therapies on patient outcomes. However,
criteria for measuring adult outcomes may not correlate to pediatric outcomes.
To help improve medical care and to ensure that researchers use the same terms
in defining “outcomes,” Canadian researchers developed standardized definitions
of surgical complications and surgical outcomes for pediatric neurosurgery (Journal of Neurosurgery: Pediatrics,
August 2012). Via group consensus, 41 definitions and 13 grading scales
have been created. To read more click here.
Predicting Outcomes for Glioblastoma
article appearing in the Journal of
Neurosurgery, September 2012, explores the possible role of a protein
called “neurofilament protein” (NFP) in predicting outcomes for primary
glioblastomas. Researchers in France analyzed tissue from 302 newly-diagnosed
adult primary supratentorial glioblastoma tumors and recorded each patient’s
imaging, treatment and clinical data. About 58% of the tumors tested positive
for the presence of NFP, and it appeared this subgroup did somewhat better than
patients with NFP-negative tumors. The researchers concluded that NFP
expression may help identify a distinct subgroup of glioblastoma with a more
favorable prognosis, which may be a consideration in planning future therapies. Click here to read the abstract.
Physician Reluctance to Discuss Poor
are several reasons – and misbeliefs – surrounding physician hesitance to
discuss prognosis with their patients. A commentary appearing in the Journal of Clinical Oncology, August 2012,
explores perceptions of the emotional impact of sharing a poor prognosis, the
maintenance of hope, cultural sensitivities about prognosis, the involvement of
hospice and palliative care, and the emotional impact on physicians themselves.
The article dispels several common beliefs, and suggests resources for facilitating
these conversations. Access the entire article here.
Radiosurgery for Subtotally Resected Adult
are uncommon tumors that arise from the pineal gland. Because they are rare,
data describing outcomes has been limited to articles reporting very small
numbers of patients. Researchers in Arizona recently reviewed medical records
and imaging for 14 patients with pineocytoma. They concluded that the patients
with residual tumor after surgery, who were then treated with stereotactic
radiosurgery, appeared to have a minimized long-term risk of tumor progression.
Read more from the Journal of Neurosurgery,
August 2012, here.
Founded in 1973, the American Brain Tumor Association (ABTA) was the first national nonprofit organization dedicated solely to brain tumor research. For nearly 40 years, the ABTA has been providing comprehensive resources that support the complex needs of brain tumor patients and caregivers, as well as the critical funding of research in the pursuit of breakthroughs in brain tumor diagnosis, treatment and care.
Make a donation to the American Brain Tumor Association.
This information is provided by the American Brain Tumor Association, 8550 W. Bryn Mawr Ave., Suite 550, Chicago, IL 60631. For more information about the American Brain Tumor Association, call toll-free 866-659-1030, write email@example.com or visit www.abta.org.
"American Brain Tumor Association" and "TrialConnect" are registered trademarks of the American Brain Tumor Association. The ABTA logo, the "Breakthrough for Brain Tumors" name and logo, and the "Team Breakthrough" name and logo are trademarks of the American Brain Tumor Association. All rights reserved.
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©2012 American Brain Tumor Association
Having Fun Raising Funds
To learn more about our events visit www.abta.org/events.
Pray for Gray
September 14, 2012
St. Louis Fall Festival
September 15, 2012
St. Louis, MO
Cheryl Kay Race Day
September 15, 2012
Putt Cancer In the Hole
September 15, 2012
Paul Fabbri Memorial Golf Classic
September 22, 2012
Humor to Fight the Tumor
September 22, 2012
Jim Vassar Kicks Cancer
September 22, 2012
Bill's Bears Bash to Beat Brain Tumors
September 23, 2012
2nd Annual Ron Love Walk/Run for Hope
September 29, 2012
Team Breakthrough Bank of America Chicago Marathon
October 7, 2012
Breakthrough for Brain Tumors NYC 5K Run/Walk
November 10, 2012
New York, NY
The ABTA's Connections links patients, families, friends, caregivers and health care professionals with each other for support and inspiration. The online community is a safe place to visit, join and interact with members of the brain tumor community nationally and around the world.
Find a Clinical Trial Through Trial Connect
The ABTA's TrialConnect, a free and confidential service administered by EmergingMed, is offered in English and Spanish. Read more.
Our Care Consultants provide brain tumor information, support and education for patients, families and health care professionals. Write firstname.lastname@example.org or call our toll-free CareLine at 800-886-ABTA (2282).