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 December 2012

Holiday Help is Here!

Winter HolidayFor most of us, the holiday season is hectic and can at times become overwhelming. We know that for many of our families this is a difficult time of year. If this is the case for you, the ABTA’s new caregiving service, MyCaringLink, may be of interest. MyCaringLink is a web-based service that is designed to help families organize, prioritize and schedule errands, tasks and obligations; share important updates; and let friends and family members know the many ways in which they can be of help. Visit the ABTA’s Anytime Learning section of our website and watch a pre-recorded webinar on the new service. To access and register for MyCaringLink, click here. Now when friends and family members ask how they can be of help, you can send them to your personalized MyCaringLink web page and let them select the best way that they can help out this season.

Also, remember that the ABTA’s licensed professional Care Consultants are skilled listeners and experienced in helping patients and family members navigate the range of emotions often brought on by events of the season. Call 800-886-ABTA (2282) or send an email at  

Warm holiday greetings to all and wishes for a season filled with love from family and friends from all of us at the ABTA. 

Support breakthroughs in labs and in lives. Click here to give to the annual fund.

ABTA Webinars Offer “Anytime Learning”
Last month, Dr. Joon Uhm of Mayo Clinic presented the “Understanding Non-Malignant Brain Tumors” webinar. He discussed meningiomas, pituitary and other non-malignant tumors, deciding between the “watch and wait” approach and taking immediate action, the types of treatments that are possible, and what the risk factors and deciding factors may be. You can view this and other previously broadcast webinars at the Anytime Learning section of our website.

You can also register now for our upcoming 2013 webinars, including “Coping with Caregiver Stress,” “Multidisciplinary Approaches to Treating Pediatric Brain Tumors,” and “Understanding Palliative Care.”


Fundraising TabSupport “Breakthroughs” in Tampa
5K RunnersOn February 9, the inaugural Breakthrough for Brain Tumors Tampa 5K Run & Walk will bring together patients, caregivers, friends and health care professionals for some fun while raising mission critical funds for the ABTA. Register today at

Move Further in 2013
If you’re up to the challenge, register for a half marathon, full marathon or triathlon in 2013 through  Team Breakthrough, the ABTA’s endurance fundraising team. Join us at one of seven national events or choose your own. Visit to learn more and join this incredible nationwide athletic team.

tab research newsApplications for 2013 Research Funding Opportunities Now Being Accepted
Applications are now being accepted for the ABTA’s 2013 Basic Research Fellowships and Translational Grants. Applications for these funding programs must be submitted via the ABTA’s online Grant Portal no later than January 09, 2013. Fellowships and Translational research projects begin July 1, 2013. Click here to apply. Questions? Email

Brain Tumor Incidence and Prevalence Statistics Updated
The Central Brain Tumor Registry of the United States (CBTRUS) recently released its November 2012 Statistical Report which estimates the 2013 the incidence of primary brain tumors—the number of people diagnosed during the year—at 69,720 people. Of these, 4,300 will be children. CBTRUS estimates the prevalence of brain tumors – the number of people living with the diagnosis – at 688,096. It is important to note that while these figures represent increases over previous statistics, they are likely attributable to better brain tumor diagnosis, methodology and tracking.

The report also reveals that the most common primary brain tumors remain meningiomas (36%), followed by glioblastomas (16%) and pituitary tumors (14%). To help ensure access to these important statistics, the American Brain Tumor Association supported the printing of this report for distribution to the brain tumor scientific and medical community. The data is available online.

For an overview of the 2012 brain tumor facts and statistics, click here. To access the complete CBTRUS report, visit 

Cognitive Function in Long-term Survivors of Medulloblastoma
Scientists at St. Jude Children’s Research Hospital recently investigated the association between the condition of the white matter of the brain and higher-level thinking processes in adult survivors of pediatric medulloblastoma. Twenty adult patients who received craniospinal irradiation (CSI) as children and were more than 10 years post-diagnosis were randomly recruited from the St. Jude Lifetime Cohort Study to participate in this research. The survivors underwent comprehensive assessments of their neurocognitive (thinking and processing) functions, and MRI scans to determine brain volume and thickness. The study, presented in a supplement to the journal Neuro-oncology titled “Applied Neuro-Oncology (2012),” suggests a relationship between reduced integrity of the white matter of the brain and impairments in executive functions such as ability to shift problem solving strategies between two tasks, planning and organization. Notably, self-reported challenges in these areas did not necessarily match the test findings, indicating that survivors may adapt over time. For the article abstract, click here.

 AboutABTA.gifFounded in 1973, the American Brain Tumor Association was the first and is now the only national nonprofit organization dedicated to providing both support services to brain tumor patients and their families and the funding of brain tumor research. For more information, visit

Make a donation to the American Brain Tumor Association.

This information is provided by the American Brain Tumor Association, 8550 W. Bryn Mawr Ave., Suite 550, Chicago, IL 60631. For more information about the American Brain Tumor Association, call toll-free 866-659-1030, write or visit


The "American Brain Tumor Association" name and logo,  the "Breakthrough for Brain Tumors" name and logo, and "TrialConnect" are registered trademarks of the American Brain Tumor Association. The "Team Breakthrough" name and logo are trademarks of the American Brain Tumor Association. All rights reserved. 


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Holiday Cards


Need to send out last-minute holiday greetings? There's still time to purchase your holiday cards from the ABTA. We'll receive 50% of the profits from the sale, along with 100% of any additional donations you make. Prices start at $29 for a box of 25; cards can be personalized with your name or special message.

View and order online by clicking here or call 888-487-5567.

Having Fun Raising Funds

To learn more about our events visit



Connect with Others at Connections Online 
The ABTA's Connections online community links patients, families, friends, caregivers and health care professionals with each other for support and inspiration. It is a safe place to visit, join and interact with members of the brain tumor community nationally and around the world.

Get Caregiver Support through MyCaringLink
MyCaringLink, powered by Lotsa Helping Hands, is the ABTA's personalized online caregiver support tool. 

Find a Clinical Trial Through TrialConnect
The ABTA's TrialConnect, a free and confidential service administered by EmergingMed, is offered in English and Spanish. Read more.

Consultation Services
Our Care Consultants provide brain tumor information, support and education for patients, families and health care professionals. Write or call our toll-free CareLine at 800-886-ABTA (2282).


This communication is not intended as a substitute for professional medical advice and does not provide advice on treatments or conditions for individual patients. All health and treatment decisions must be made in consultation with your physician(s), utilizing your specific medical information. The links set out on this communication are provided for your convenience only. The American Brain Tumor Association does not endorse the information contained on the linked websites or individual(s)/companies/institutions operating these websites.