| December 2012
Holiday Help is Here!
For most of us, the
holiday season is hectic and can at times become overwhelming. We know that for
many of our families this is a difficult time of year. If this is the
case for you, the ABTA’s new caregiving service, MyCaringLink, may be of
interest. MyCaringLink is a web-based service that is designed to help families
organize, prioritize and schedule errands, tasks and obligations; share
important updates; and let friends and family members know the many ways in
which they can be of help. Visit the
ABTA’s Anytime Learning section of our website and
watch a pre-recorded webinar on the new service. To access and register for MyCaringLink,
here. Now when friends and family
members ask how they can be of help, you can send them to your personalized MyCaringLink
web page and let them select the best way that they can help out this season.
Also, remember that the
ABTA’s professional Care Consultants are skilled listeners and
experienced in helping patients and family members navigate the range of
emotions often brought on by events of the season. Call 800-886-ABTA (2282) or
send an email at firstname.lastname@example.org.
Warm holiday greetings to
all and wishes for a season filled with love from family and friends from all
of us at the ABTA.
Support breakthroughs in labs and in lives. Click here to give to the annual fund.
ABTA Webinars Offer “Anytime Learning”
Last month, Dr. Joon Uhm
of Mayo Clinic presented the “Understanding Non-Malignant Brain Tumors”
webinar. He discussed meningiomas, pituitary and other non-malignant tumors, deciding
between the “watch and wait” approach and taking immediate action, the types of
treatments that are possible, and what the risk factors and deciding factors
may be. You can view this and other previously broadcast webinars at the Anytime
Learning section of our website.
You can also register now for our upcoming 2013 webinars, including “Coping with Caregiver Stress,”
“Multidisciplinary Approaches to Treating
Pediatric Brain Tumors,” and “Understanding Palliative Care.”
Support “Breakthroughs” in Tampa
On February 9, the
for Brain Tumors Tampa 5K Run & Walk will bring together patients,
caregivers, friends and health care professionals for some fun while raising
mission critical funds for the ABTA. Register today at www.breakthroughforbraintumors.org.
Move Further in 2013
If you’re up to the challenge,
register for a half marathon, full marathon or triathlon in 2013 through Team Breakthrough, the ABTA’s endurance
fundraising team. Join us at one of seven national events or choose your own.
to learn more and join this incredible nationwide athletic team.
Applications for 2013 Research Funding Opportunities Now Being
Applications are now being accepted for the ABTA’s 2013 Basic Research
Fellowships and Translational Grants. Applications for these funding programs must
be submitted via the ABTA’s online Grant Portal no later than January 09, 2013.
Fellowships and Translational research projects begin July 1, 2013. Click here to apply. Questions? Email email@example.com.
Tumor Incidence and Prevalence Statistics Updated
The Central Brain Tumor Registry of the United States (CBTRUS) recently released its November 2012 Statistical Report which estimates the 2013 the incidence of primary brain tumors—the number of people diagnosed during the year—at 69,720 people. Of these, 4,300 will be children. CBTRUS estimates the prevalence of brain tumors – the number of people living with the diagnosis – at 688,096. It is important to note that while these figures represent increases over previous statistics, they are likely attributable to better brain tumor diagnosis, methodology and tracking.
The report also reveals that the most common primary brain tumors remain meningiomas (36%), followed by glioblastomas (16%) and pituitary tumors (14%). To help ensure access to these important statistics, the American Brain Tumor Association supported the printing of this report for distribution to the brain tumor scientific and medical community. The data is available online.
For an overview of the 2012 brain tumor facts and statistics, click here. To
access the complete CBTRUS report, visit http://www.cbtrus.org/reports/reports.html.
Cognitive Function in Long-term Survivors of
Scientists at St.
Jude Children’s Research Hospital recently investigated the association between
the condition of the white matter of the brain and higher-level thinking
processes in adult survivors of pediatric medulloblastoma. Twenty adult
patients who received craniospinal irradiation (CSI) as children and were more
than 10 years post-diagnosis were randomly recruited from the St. Jude Lifetime
Cohort Study to participate in this research. The survivors underwent
comprehensive assessments of their neurocognitive (thinking and processing)
functions, and MRI scans to determine brain volume and thickness. The study,
presented in a supplement to the journal Neuro-oncology
titled “Applied Neuro-Oncology (2012),” suggests a relationship between reduced
integrity of the white matter of the brain and impairments in executive
functions such as ability to shift problem solving strategies between two
tasks, planning and organization. Notably, self-reported challenges in these
areas did not necessarily match the test findings, indicating that survivors
may adapt over time. For the article abstract, click here.
Founded in 1973, the American Brain Tumor Association was
the first and is now the only national nonprofit organization dedicated to
providing both support services to brain tumor patients and their families and
the funding of brain tumor research. For more information, visit www.abta.org.
Make a donation to the American Brain Tumor Association.
This information is provided by the American Brain Tumor Association, 8550 W. Bryn Mawr Ave., Suite 550, Chicago, IL 60631. For more information about the American Brain Tumor Association, call toll-free 866-659-1030, write firstname.lastname@example.org or visit www.abta.org.
The "American Brain
Tumor Association" name and logo, the "Breakthrough for Brain
Tumors" name and logo, and "TrialConnect" are registered
trademarks of the American Brain Tumor Association. The "Team
Breakthrough" name and logo are trademarks of the American Brain Tumor
Association. All rights reserved.
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©2012 American Brain Tumor Association
Need to send out last-minute holiday greetings? There's still time to purchase your holiday cards from the ABTA. We'll receive 50% of the profits from the sale, along with 100% of any additional donations you make. Prices start at $29 for a box of 25; cards can be personalized with your name or special message.
View and order online by clicking here or call 888-487-5567.
Having Fun Raising Funds
To learn more about our events visit www.abta.org/events.
Connect with Others at Connections Online
The ABTA's Connections online community links patients, families, friends, caregivers and health care professionals with each other for support and inspiration. It is a safe place to visit, join and interact with members of the brain tumor community nationally and around the world.
Get Caregiver Support through MyCaringLink
MyCaringLink, powered by Lotsa Helping Hands, is the ABTA's personalized online caregiver support tool.
Find a Clinical Trial Through TrialConnect
The ABTA's TrialConnect, a free and confidential service administered by EmergingMed, is offered in English and Spanish. Read more.
Our Care Consultants provide brain tumor information, support and education for patients, families and health care professionals. Write email@example.com or call our toll-free CareLine at 800-886-ABTA (2282).