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March 2013
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Providing and Pursuing Answers for 40 Years
40.pngOn this day in 1973, two Chicago-area mothers who were facing the unthinkable - the loss of a child - came together to form an organization that would become a recognized leader in the brain tumor community. And though the children themselves would not live to see it, their mothers' love and loss inspired a national movement in brain tumor research funding and patient and family education and support.
Today, Stephanie Kramer and Micki Rae Shanoff continue to inspire the organization and its mission to advance the understanding and treatment of brain tumors with the goals of improving, extending and, ultimately, saving lives. To learn more, visit the About Us section of our website.

2013 Gingras Award Recipients
The American Brain Tumor Association has named Louis and Phyllis Jacobs as the recipients of its 2013 Joel A. Gingras, Jr. Award. This award is presented annually to an individual, organization or group that through philanthropy, advocacy, discovery or patient care has had a major impact on the ability of the ABTA to achieve its mission. For more than 14 years, the Jacobs' have helped patients and families as support group leaders in Wichita, KS. They have a history of support for the ABTA, including the funding of one of our early Discovery Grants. Work conducted under this grant led to breakthrough findings that may link oligodendrogliomas and astrocytomas to a new gene mutation. These findings resulted in the researcher being awarded funding of a five-year research project through the National Cancer Institute. The Joel A. Gingras Award will be presented by ABTA President & CEO Elizabeth M. Wilson at the annual JAG, Jr. Foundation Gala being held on Saturday, March 23 at the Ritz-Carlton in Philadelphia. The award was established in 2010 in honor of the of the Joel A. Gingras, Jr. Memorial Foundation, which to date has raised $1.4 million for the ABTA. 

 
March Webinar Looks at the Scope of Palliative Care
When people hear the term “palliative care,” they often think solely of its end-of-life applications. But palliative care is much more. Palliative care focuses on relieving and preventing suffering from serious illness. Unlike hospice care, palliative medicine is appropriate for patients in all disease stages, including those undergoing treatment for curable illnesses and those living with chronic diseases, as well as patients who are nearing the end of life. Palliative medicine uses a multidisciplinary approach to patient care. It is a whole-person, specialized medical approach for improving the quality of life for both the patient and family. Learn more about palliative care by registering for “Understanding Palliative Care,” a free webinar scheduled for Friday, March 29 at 2 p.m. (Central time). Presented by Alan Carver, MD, of Memorial Sloan-Kettering Cancer Center, the webinar will address the value of using palliative care throughout the treatment process, as well as how to find palliative care, how it works, what sort of approaches are used, and who the palliative team typically includes. Click here to register for this free webinar. And for additional resources, visit the Palliative Care section of our website.

 
ABTA Philadelphia Volunteer Network Meeting
If you’re in the Philadelphia area on Friday, March 22, join the ABTA for its first Volunteer Network Meeting. The ABTA Volunteer Network is a grassroots effort to bring the resources and events of the organization closer to the individuals and families we serve. Not in Philly? We’re holding meetings all over the country. Contact National Director of Development Stacy Fass at sfass@abta.org to find out how you can get involved.


Save the Date for the ABTA Patient & Family Conference: A Focus on Caregiving
Susan Chang VideoThis year's event is scheduled for Friday and Saturday, July 26-27, at the Renaissance Chicago O’Hare Suites Hotel. In addition to brain tumor general interest topics and briefings from ABTA-funded researchers, sessions at this year’s conference will include the unique needs and challenges faced by caregivers. Watch this video from last year's event to see what conference presenter Susan Chang, MD, of the University of California, San Francisco, has to say about the importance and value of this event. Registration information is coming soon--watch your email for details. More brain tumors caregiving information is available at the Caregivers section of our website.
 
Here's a "Bright Idea" for Helping the ABTA
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May--Brain Tumor Awareness Month--is just around the corner, and we've got an exciting new way for you to raise funds and awareness in your community. Through the ABTA's new Bright Ideas! Campaign, you can spread the word about our important mission. Click here to learn more and to order your Bright Ideas! Starter Kit.
 

 
Fundraising Tab

Virtual Breakthroughs
Though the Breakthrough for Brain Tumors 5K Run & Walks are spreading out across the country, we can’t be everywhere at once. If there is no 5K in your area, you can register as a virtual walker! For a Virtual Walker registration fee of $5, you gain immediate access to fundraising tools and messages to help you achieve your breakthrough goal, including your own customized fundraising page. To register, pick one of our 2013 cities and register as a virtual walker (you can even start a virtual team if you want others to join you). In just a few easy clicks, you’ll be ready to make breakthroughs!

 
Team Breakthrough: Spotlight on Christiane Schild
Christiane Schild Team Breakthrough 2013This weekend, Christiane Schild, her brother, Brannon, and her son, Jeremy, will be running the Seabrook Lucky Train Half Marathon in memory of her father-in-law Roger. As part of the ABTA's Team Breakthrough’s “Choose Your Own” program, Christiane has raised over $2,500 to support the mission of the ABTA. The “Choose Your Own” running program allows participants to select any race, anywhere in the country (from a local 5K to a marathon or triathlon) and raise funds as a Team Breakthrough member. Christiane’s fundraising page is an amazing testament to the power of this incredible team. Learn more about being part of Team Breakthrough’s “Choose Your Own” program.

tab research news

Probability of Survival in Glioblastoma

Researchers at Mayo Clinic recently studied SEER registry records (from the National Cancer Institute) for 10,000 people diagnosed with glioblastoma (GBM) between 1998 and 2008. The researchers, including ABTA Scientific Advisory Council member, Jan Buckner, MD, looked at patient survival at six months, then one, two, three, four and five years after diagnosis. All patients in the study were initially treated with external beam radiation. To accommodate for the introduction of temozolomide chemotherapy in treatment plans, the group was divided into those diagnosed between 1998 – 2004 and 2005 - 2008. An analysis of the probability of survival found that GBM patients who survived two years had a 20% chance of living an additional five years. Of those who survived five years, the conditional probability of surviving another five years was almost 45%. These data provide intriguing background for studying the likelihood of long term GBM survivorship. Click here to read the analysis.

Outcome and Molecular Characteristics of Adolescent and Young Adult Patients with Newly Diagnosed Primary Glioblastoma
A recent study by the Society of Austrian Neurooncology, (Neuro-Oncology, December 2012) looked at the outcomes and molecular tumor characteristics of 47 adolescent and young adult patients, ages 18-40, diagnosed with GBM.  Researchers looked at overall survival, time to tumor progression, and several molecular characteristics of the tumors. Neither IDH1 nor MGMT status showed a statistically significant association with time to tumor progression or overall survival. In addition, researchers observed several  socio-economic implications of the diagnosis on this age group. To access the abstract click here. 
 
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Founded in 1973, the American Brain Tumor Association was the first and is now the only national nonprofit organization dedicated to providing both support services to brain tumor patients and their families and the funding of brain tumor research. For more information, visit www.abta.org.

This information is provided by the American Brain Tumor Association, 8550 W. Bryn Mawr Ave., Suite 550, Chicago, IL 60631. For more information about the American Brain Tumor Association, call toll-free 866-659-1030, write info@abta.org or visit www.abta.org.
 
The "American Brain Tumor Association" name and logo,  the "Breakthrough for Brain Tumors" name and logo, and "TrialConnect" are registered trademarks of the American Brain Tumor Association. The "Team Breakthrough" name and logo are trademarks of the American Brain Tumor Association. All rights reserved. 
 
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Having Fun Raising Funds

To learn more about our events, including to search for events in your state, visit: 
www.abta.org/events

JB 5K Blastoff for Brain Tumors
April 6, 2013
Waltham, MA

Pi Kappa Alpha 5K
April 20, 2013
Detroit, MI 

Bowling for Brains
April 21, 2013
Hopkins, MN

Team Breakthrough New Jersey Marathon/Long Branch Half Marathon
May 5, 2013 

Breakthrough for Brain Tumors Ypsilanti 5K Run & Walk
May 11, 2013

Vernon Hills Brain Tumor Walk
May 11, 2013
Vernon Hills, IL 

Breakthrough for Brain Tumors Spokane 5K Run & Walk
May 18, 2013

Sharing Hope: Walk the Walk, Talk the Talk
May 18, 2013
Storrs, CT 

2013 Thom Mathes 5K/1 Mile Fun Run
May 18, 2013
Shelby Township, MI 

Breakthrough for Brain Tumors Chicago 5K Run & Walk
June 1, 2013

9th Annual Head for the Cure 5K
June 8, 2013
Carmel, IN 

Glendale Community Charity Walk
June 15, 2013
Glendale, WI

Team Breakthrough San Francisco Full & Half Marathon
June 16, 2013

Breakthrough for Brain Tumors Los Angeles 5K Run & Walk
June 22, 2013

8th Annual Teeing Up for Others Golf Outing
July 19, 2013
Columbia Station, OH 

Team Breakthrough Life Time Chicago Triathlon
August 25, 2013

Van Dorston Combat Cancer Team 5K
September 14, 2013
Sanford, NC 

Team Breakthrough Philadelphia Rock 'N' Roll Half Marathon
September 15, 2013

Team Breakthrough Bank of America Chicago Marathon
October 13, 2013

Breakthrough for Brain Tumors Dallas 5K Run & Walk
Fall 2013

Breakthrough for Brain Tumors NYC 5K Run & Walk
Fall 2013

 
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Connect with Others at Connections Online 
The ABTA's Connections online community links patients, families, friends, caregivers and health care professionals with each other for support and inspiration. It is a safe place to visit, join and interact with members of the brain tumor community nationally and around the world.
 
Get Caregiver Support through MyCaringLink
MyCaringLink, powered by Lotsa Helping Hands, is the ABTA's personalized online caregiver support tool. 


Find a Clinical Trial Through TrialConnect

The ABTA's TrialConnect, a free and confidential service administered by EmergingMed, is offered in English and Spanish. Read more.


Consultation Services

Our Care Consultants provide brain tumor information, support and education for patients, families and health care professionals. Write abtacares@abta.org or call our toll-free CareLine at 800-886-ABTA (2282).
 
 

This communication is not intended as a substitute for professional medical advice and does not provide advice on treatments or conditions for individual patients. All health and treatment decisions must be made in consultation with your physician(s), utilizing your specific medical information. The links set out on this communication are provided for your convenience only. The American Brain Tumor Association does not endorse the information contained on the linked websites or individual(s)/companies/institutions operating these websites.