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June 2013
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Caregiving Takes Center Stage
The 2013 ABTA Patient and Family Conference: A Focus on Caregiving, July 26-27 in Chicago, Patient Meeting Graphicincludes two days full of unique opportunities to hear from national experts on survivorship and quality of life issues. Session topics include the role of patients in research; talking with your health care team; symptom management; nutrition and wellness; physical therapy and exercise; and finances, insurance and advance care planning.
 
Conference participants also have the option of attending the ABTA's 40th Anniversary dinner, An Evening of Love & Laughter, as part of their conference registration. The program will include a special production by The Second City Touring Company, Chicago’s legendary sketch comedy theatre, performing “The Best of Second City.” The production will be led by TJ Shanoff, accomplished Second City director and son of ABTA co-founder Linda Gene Goldstein. Don’t miss out on this incredible weekend. Click here to register today.


ABTA Supports Childhood Cancer Survivors’ Quality of Life Act
In May, the ABTA joined the Alliance for Childhood Cancer and patient advocacy groups across the country in signing on to a letter to Congresswoman Jackie Speier, thanking her for sponsoring the Childhood Cancer Survivors’ Quality of Life Act. This legislation would establish programs aimed at improving care for childhood cancer survivors. As noted in the letter to Congresswoman Speier, the Act “will enhance research on late effects and health care disparities; create pilot programs to evaluate model systems of care and identify the most effective ways to provide follow-up care to survivors; authorize grants to establish clinics to provide comprehensive, long-term follow-up care; and strengthen the emphasis on psychosocial care for childhood cancer survivors.”
 
As a Partner Organization of the Alliance for Childhood Cancer, the ABTA is proud to support this legislation along with other ACC initiatives, including the Caroline Pryce Walker Conquer Childhood Cancer Reauthorization Act, aimed at expanding research into childhood cancers, incidences and therapies.


“How Neuropathologists Generate Rapid Diagnoses During Surgery” Webinar*
Date: Thursday, June 27
Time: 2:00 – 3:00 p.m. (Central time)
Neurosurgeons rely on quick, accurate information about the part of the brain on which they are operating. They need to know whether the tissue they have biopsied is a tumor or some other abnormality, and, if it is a tumor, what type of tumor it is. This webinar, led by Craig Horbinski, MD, PhD, will examine the ways in which neuropathologists provide critical information during surgery—including inspection of tissue biopsy and examination of tissue under the microscope—all of which helps determine diagnoses and ultimately the course of treatment for the brain tumor patient. Click here to register.
*Please note audio-only instructions will be available for those without daytime computer access.  


“Updates in Surgery and Surgical Techniques for Brain Tumor Patients” Webinar*
Date: Wednesday, July 10
Time: 2:00 – 3:00 p.m. (Central time)
Whether you use the word “surgery,” “resection,” “operation,” “brain operation” or “brain surgery,” surgery is usually the first step in treating most benign and many malignant tumors, and is often the preferred treatment when a tumor can be removed without unnecessary risk of neurological damage. This webinar, led by Ryan Barrett, DO, FACOS, will look at new surgical imaging technologies, mapping and planning systems, navigational tools, and imaging devices. Click here to register.
*Please note audio-only instructions will be available for those without daytime computer access. 


ABTA Generates 250,000 Bright Ideas During Brain Tumor Awareness Month
Bright Ideas Light bulbLast month we celebrated Brain Tumor Awareness Month with Bright Ideas—a campaign that spotlights our pursuit of brain tumor breakthroughs that will lead to new thinking, better understanding and more effective treatments.  With your help, we reached nearly a quarter million people via social media. You can follow our Bright Ideas on Facebook and Twitter, share our posts with your friends and followers, and let everyone know that brain tumor awareness—and the work of the ABTA—is important all year round.


Minneapolis Volunteer Network Meeting
If you're in or from the Twin Cities area, please plan to join us on Wednesday, July 10 for an informal dinner and introduction to the ABTA Minnesota Volunteer Network.  Whatever your link to the brain tumor community, come share your thoughts, needs and ideas for greater local engagement with the ABTA. Click here to RSVP.

Fundraising Tab 
Making Breakthroughs on the West Coast
BT5K logoThe next Breakthrough for Brain Tumors 5K Run & Walk is just a week away. On Saturday, June 22, hundreds of ABTA supporters will gather at the beautiful Los Angeles County Arboretum and Botanic Garden This event, which began in 2009 as the Eric Perry Memorial Run/Walk, has more than quadrupled in size since last year, and is on its way to becoming one of the ABTA’s signature 5Ks. Click here to start a team, join a team or register as an individual today. 

Post-Close Bibs Available for Chicago Marathon
As an official charity partner, the ABTA's endurance and fundraising team, Team Breakthrough, has a limited number of hard-to-find post-close bibs for the October 13 international event. If you’re up to the challenge of running in a world-class marathon while helping to advance the understanding and treatment of brain tumors, click here to register.

 

tab research news

Avastin Clinical Trials Show No Benefit for Newly-Diagnosed GBMs
The results of two clinical studies that looked into the effectiveness of Avastin (bevacizumab) as a first-line therapy for patients with newly-diagnosed glioblastoma multiforme (GBM) were announced on June 1 at the annual meeting of the American Society for Clinical Oncology (ASCO) meeting in Chicago. These studies showed that newly-diagnosed patients who were treated with Avastin in conjunction with the chemotherapeutic drug Temodar (temozolomide) and radiation showed no improvement in overall survival rates—and in one of the studies experienced more side effects—than those treated with Temodar and radiation alone.
 
While the FDA evaluates the impact of these two very large studies, the research pipeline is robust with new approaches to treating these aggressive tumors, any one of which could yield future benefits.  Some of these options are the result of ABTA-funded Discovery research into the development of two new categories of drugs. Investigative treatments include drugs that interfere with multiple biologic pathways, new combinations of oral drugs, altered viruses that carry treatments into the tumor, new ways of delivering radiation therapy, new surgical tools that use heat to kill tumor cells, and renewed interest in immunotherapy—an approach that harnesses the body's own immune functions to fight the tumor. In addition, there are currently more than 200 clinical studies open to patients with GBMs. More information about clinical trials and research currently being funded by the ABTA can be found at www.abta.org/advancing-research.

Brain Metastases Overview
A supplement to the March 2013 issue of Surgical Neurology International is dedicated to brain metastases and is available online without a subscription. The issue provides an overview of the epidemiology of the disease, diagnostics including advanced imaging and neuropathology, surgery, stereotactic radiosurgery and stereotactic radiotherapy, whole brain radiation, future directions in treatment of brain metastases, and controversies in the management of this disease. Click here to access the entire issue.
 
The ABTA recently hosted a Brain Metastases Breakfast Forum for various primary cancer organizations whose survivors are at a higher risk of developing brain metastasis. The goal for this forum was to identify gaps in knowledge and education of brain metastases among primary cancer groups. Eric L. Chang, MD, a radiation oncologist from USC Keck School of Medicine, provided strong data on the incidence and prevalence of brain metastases. Representatives from Susan G. Komen, Lungeveity, ABCD - After Breast Cancer Diagnosis, and Damon Runyon Cancer Research Foundation were in attendance. 


Sharing Results of Genetic Testing
As use of genetic testing increases, it is expected that DNA analyses will increasingly be used to help inform health care choices. While personalizing cancer treatment has many advantages, sharing test results may have consequences that extend beyond providing cancer care for an individual patient. A review article published in the May 20, 2013 Special Series issue of Journal of Clinical Oncology explores the ethical and legal duties of returning genetic results, current privacy and data sharing practices, and the need to design informed disclosure policies. Click here to access the abstract.

AboutABTA.gif
Founded in 1973, the American Brain Tumor Association was the first and is now the only national organization committed to funding brain tumor research and providing information, support and educational resources for all age groups and all  tumor types. For more information, visit www.abta.org or call 800-886-ABTA (2282).

This information is provided by the American Brain Tumor Association, 8550 W. Bryn Mawr Ave., Suite 550, Chicago, IL 60631. For more information about the American Brain Tumor Association, call toll-free 866-659-1030, write info@abta.org or visit www.abta.org.
 
The "American Brain Tumor Association" name and logo,  the "Breakthrough for Brain Tumors" name and logo, the "Team Breakthrough" name and logo and "TrialConnect" are registered trademarks of the American Brain Tumor Association. All rights reserved. 
 
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Having Fun Raising Funds

To learn more about our events, to search for events in your state, or to learn how to host your own volunteer fundraising event, visit: 

Thomas C. Ellis 5K Trail Race & 1 Mile Walk
June 14, 2013
Broadview Heights, OH

Greendale Community Charity Walk
June 15, 2013
Greendale, WI

Team Breakthrough San Francisco Full & Half Marathon
June 16, 2013
San Francisco, CA

Breakthrough for Brain Tumors Los Angeles 5K Run & Walk
June 22, 2013
Los Angeles, CA

Swingin' for Support
June 29, 2013
Parma, OH

Tee'd Off at Cancer
July 1, 2013
Fairborn, OH

Jeff's Yard Sale
July 5, 2013
St. Thomas, PA

8th Annual Teeing Up for Others Golf Outing
July 19, 2013
Columbia Station, OH 

16th Annual Paul Fabbri Memorial Golf Classic
August 10, 2013
Wheeling, IL

4th Annual Mary E. Smith Brain Tumor Awareness Fun Run/Walk
August 10, 2013
Country Club Hills, IL

Team Breakthrough Life Time Chicago Triathlon
August 25, 2013
Chicago, IL

Van Dorston Combat Cancer Team 5K
September 14, 2013
Sanford, NC 

Team Breakthrough Philadelphia Rock 'N' Roll Half Marathon
September 15, 2013
Philadelphia, PA

Team Breakthrough Bank of America Chicago Marathon
October 13, 2013
Chicago, IL

Breakthrough for Brain Tumors Dallas 5K Run & Walk
October 26, 2013
Dallas, TX 

Breakthrough for Brain Tumors NYC 5K Run & Walk
November 9, 2013
New York, NY

 
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Connect with Others at Connections Online 
The ABTA's Connections online support community links patients, families, friends, caregivers and health care professionals with each other for support and inspiration. It is a safe place to visit, join and interact with members of the brain tumor community nationally and around the world.
 
Get Caregiver Support through MyCaringLink
MyCaringLink, powered by Lotsa Helping Hands, is the ABTA's personalized online caregiver support tool. 


Find a Clinical Trial Through TrialConnect

The ABTA's TrialConnect, a free and confidential service administered by EmergingMed, is offered in English and Spanish. Read more.


Consultation Services

Our Care Consultants provide brain tumor information, support and education for patients, families and health care professionals. Write abtacares@abta.org or call our toll-free CareLine at 800-886-ABTA (2282).
 
 

This communication is not intended as a substitute for professional medical advice and does not provide advice on treatments or conditions for individual patients. All health and treatment decisions must be made in consultation with your physician(s), utilizing your specific medical information. The links set out on this communication are provided for your convenience only. The American Brain Tumor Association does not endorse the information contained on the linked websites or individual(s)/companies/institutions operating these websites.