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September 2013

September Webinars 

Brain Tumor Surgery and Surgical Techniques
Wednesday, September 11 at 2 p.m. (Central time) 
Surgery is usually the first step in treating most benign—and many malignant—tumors, and is often the preferred treatment when a tumor can be removed without unnecessary risk of neurological damage. This webinar will discuss new imaging technologies, mapping and planning systems, and navigational tools used during surgery. Ryan Barrett, DO, FACOS, program director for Neurosurgery Residency at Providence Hospital and Medical Centers and clinical assistant professor at the Michigan State University College of Osteopathic Medicine, will be the presenter. Click here to RSVP.

Pediatric Brain Stem and Spinal Cord Tumors
Tuesday, September 17 at 2 p.m. (Central time) 
Brain stem and spinal cord tumors manifest themselves differently in children than they do in adults. They often grow in different areas, develop from different cell types, and may have a different outlook and treatment. George Jallo, MD, professor of Neurosurgery, Pediatrics and Oncology at Johns Hopkins, will discuss the unique nature of pediatric brain stem and spinal cord tumors, as well as provide updates in surgical treatments and research. Click here to RSVP.

Advanced Care Planning and Making Family Decisions
Thursday, September 26 at 2 p.m. (Central Time)
Planning ahead is an important way to ensure an orderly future for you and your loved ones. When you take the time to clarify your future health care decisions, your family can feel more confident in moving forward with those choices. Lynne Taylor, MD, FAAN, director, Palliative Care Service and Neuro-Oncologist, Tufts Medical Center Cancer Center, will help you to learn more about what conversations to have and how to prepare yourself and your family for the future. Click here to RSVP


Volunteer Network Meetings
Our Volunteer Network Meetings bring together members of the brain tumor community to discuss ideas about programming and topics you would like to see in your area. After the initial meeting, Volunteer Network Events will be held based on the feedback we receive. We’re visting communities all around the country. Click here to find a meeting near you. We can’t wait to see you there.

Health Care Professionals…Join the ABTA in Las Vegas
The ABTA, in joint sponsorship with Cleveland Clinic, presents the 15th Annual Brain Tumor Update & 4th Annual International Symposium on Long-Term Control of Metastases to the Brain and Spine.

Date: November 9-10, 2013
Location: The Bellagio Hotel, Las Vegas, NV 

On Saturday, November 9, the conference will feature a day-long “Partners in Care” track developed by the American Brain Tumor Association in joint sponsorship with Cleveland Clinic. This track is especially for nurses, social workers and physicians who would like to advance their knowledge of issues that directly impact brain tumor patients and families. Topics include symptoms and management, palliative care and end of life, coping as a caregiver, and financial resources. On Sunday, November 10, Cleveland Clinic, with the ABTA, will present their annual Brain Tumor Update, which will include nationally recognized brain tumor experts reporting in-depth updates on gliomas and information about management of unusual tumor types. 

Attend one or both days. Visit to register.

This Activity has been approved for AMA PRA Category 1 CreditsTM. Continuing Education Units are available for nurses and social workers who attend the conference.


ABTA Holiday Cards
Holiday CardSend the holiday card that gives back. Purchase your holiday cards from the ABTA and we'll receive 50% of the profits from the sale, along with 100% of any additional donation you make. Prices start at $29 for a box of 25, cards can be personalized with your name or special message. View and order online by clicking here or call 888-487-5567.

Fundraising TabBreakthrough Spotlight
teamnco.pngOn Sunday, August 25, husband and wife Michael and Sally Wood, along with four friends, completed the LifeTime Chicago Triathlon as part of Team Breakthrough, the ABTA’s endurance and fundraising team. Completing a triathlon is no easy feat – and Michael did it while battling a brain tumor. Diagnosed last December, Michael has had two surgeries, radiation and on-going chemotherapy. The team of six, named “Never Click Out” after a cycling term, decided to be part of Team Breakthrough to challenge themselves while supporting the programs and services of the ABTA – and to date they have raised more than $8,500. To read more, visit Sally’s personal fundraising page. You, too, can accomplish amazing things with Team Breakthrough! Visit to learn more.


Run. Walk. Breakthrough.
If a triathlon is a little too far, how about joining us for a 5K run? The ABTA’s Breakthrough for Brain Tumors 5K Run & Walk is finishing 2013 strong with events in Dallas, TX on October 26 and New York City on November 9. Be part of these incredible events and help make breakthroughs for brain tumor patients and their families. Visit to register for any of our upcoming races.

tab research news
Integrating Dietary Supplements Into Cancer Care
Many studies confirm that a majority of patients undergoing cancer therapy use self-selected forms of complementary therapies--mainly dietary supplements--and that patients often do not report their use of supplements to their medical providers. A collaborative project of the Clinical Practice Committee of The Society of Integrative Oncology offers physicians and other health care providers information about current use of these supplements to help them discuss realistic expectations and benefits/risks with their patients. The article is available online through Integrative Cancer Therapies and contains basic information on supplements, effectiveness evidence, adverse effects, and interactions with medications. Access the article here.

Prognosis Predictions Using an Online Calculator
A recent validation study explored the reliability of an online “GBM Calculator,” available to health care professionals, which is intended to predict survival. The calculator is based on a variety of factors including overall survival, WHO performance status, MGMT status and age, as well as several other variables. The study, which appeared in Neuro-Oncology (August 2013), looked at one hundred eighty-seven patients from two neurosurgical units in the UK with histologically confirmed glioblastoma (WHO grade IV) whose information at diagnosis was entered into the GBM calculator. A record was made of the actual and predicted median survival time for each patient. Statistical analysis was performed to assess the accuracy, precision, correlation, and discrimination of the calculator. The authors suggest another validation exercise should be undertaken to look at the accuracy of this particular tool, as their calculations did not reliably match this group of patient’s actual survival. Read the abstract here.

Cavernous Malformations of the Basal Ganglia in Children
A recent study by researchers from the Harvard Medical System in Boston, MA, including 2011 ABTA Discovery Grant Alumni, Dr. Edward R. Smith, reviewed the clinical course and surgical outcome of a series of children with basal ganglia cavernous malformations (CMs).  CMs of the basal ganglia are relatively rare lesions that can lead to considerable neurological impairment as they are located in the portion of the brain that controls motor functions, speech and senses. The researchers evaluated 180 patients’ baseline demographics, presenting signs, operative outcomes, and condition at long-term follow-up visits and compared these characteristics among patients who underwent surgery and those who were observed. To read the results and abstract, click here


Founded in 1973, the American Brain Tumor Association was the first and is now the only national organization committed to funding brain tumor research and providing information, support and educational resources for all age groups and all  tumor types. For more information, visit or call 800-886-ABTA (2282).

This information is provided by the American Brain Tumor Association, 8550 W. Bryn Mawr Ave., Suite 550, Chicago, IL 60631. For more information about the American Brain Tumor Association, call toll-free 866-659-1030, write or visit
The "American Brain Tumor Association" name and logo,  the "Breakthrough for Brain Tumors" name and logo, the "Team Breakthrough" name and logo and "TrialConnect" are registered trademarks of the American Brain Tumor Association. All rights reserved. 
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Having Fun Raising Funds

To learn more about our events, to search for events in your state, or to learn how to host your own volunteer fundraising event, visit: 

Van Dorston Combat Cancer Team 5K
September 14, 2013
Sanford, NC 

Putt Cancer in the Hole
September 14, 2013
Seattle, WA 

Team Breakthrough Philadelphia Rock 'N' Roll Half Marathon
September 15, 2013
Philadelphia, PA

Humor to Fight the Tumor
September 21, 2013
Minneapolis, MN

3rd Annual Ron Love Walk/Run for Hope
September 28, 2013
Crawfordsville, IN

Team Breakthrough Bank of America Chicago Marathon
October 13, 2013
Chicago, IL

Corks for a Cure
October 18, 2013
Park Ridge, IL

Breakthrough for Brain Tumors Dallas 5K Run & Walk
October 26, 2013
Dallas, TX 

Breakthrough for Brain Tumors NYC 5K Run & Walk
November 9, 2013
New York, NY

Connect with Others at Connections Online 
The ABTA's Connections online support community links patients, families, friends, caregivers and health care professionals with each other for support and inspiration. It is a safe place to visit, join and interact with members of the brain tumor community nationally and around the world.
Get Caregiver Support through MyCaringLink
MyCaringLink, powered by Lotsa Helping Hands, is the ABTA's personalized online caregiver support tool. 

Find a Clinical Trial Through TrialConnect

The ABTA's TrialConnect, a free and confidential service administered by EmergingMed, is offered in English and Spanish. Read more.

Consultation Services

Our Care Consultants provide brain tumor information, support and education for patients, families and health care professionals. Write or call our toll-free CareLine at 800-886-ABTA (2282).

This communication is not intended as a substitute for professional medical advice and does not provide advice on treatments or conditions for individual patients. All health and treatment decisions must be made in consultation with your physician(s), utilizing your specific medical information. The links set out on this communication are provided for your convenience only. The American Brain Tumor Association does not endorse the information contained on the linked websites or individual(s)/companies/institutions operating these websites.