The American Brain Tumor Association (ABTA) values its relationship with patients, families and supporters.  We are careful to protect that relationship by respecting your privacy and the information you share with us.

Our Internet privacy policy is explained below. This policy was last reviewed January 2010. If you have any questions or comments, please contact us at our toll-free number 800-886-2282, by e-mail to:, or at our address: American Brain Tumor Association, 8550 W Bryn Mawr Ave., Suite 550, Chicago, IL 60631-3225.

About Our Information-Gathering Practices

We never give, sell or rent our mailing lists.

Regardless of whether you contact us by phone, e-mail, or register at our web site, your name will not be shared with others outside of ABTA and its authorized agents. Exceptions to this policy include your approval or request to share your information, legal processes, or when we believe that disclosure is necessary to protect you or our rights as required by law. This includes, but is not limited to, mailing addresses, telephone or fax numbers, and e-mail addresses.

From time to time, we may become aware of information or services that may be of interest to you such as a new support group or a brain tumor meeting in your area. In those circumstances, we will mail the information to you. We do not give, sell, or rent mailing lists to anyone.

Requests for information sent through our web site are mailed from ABTA offices.

We collect an Internet Protocol (IP) address from all visitors to our site.

An IP address is a number that is automatically assigned to your computer when you use the Internet. We use IP addresses to help diagnose problems with our server, administer our site, analyze trends, track users' movement, gather broad demographic information for aggregate use in order for us to improve the site, and deliver customized, personalized content.

Our web site may use cookies to enhance your site experience.

Cookies are pieces of information that some Web sites transfer to the computer that is browsing that Web site and are used for record-keeping purposes at many Web sites. Use of cookies makes Web-surfing easier by performing certain functions such as saving your passwords, your personal preferences regarding your use of the particular Web site and to make sure you don't see the same ad repeatedly. Many consider the use of cookies to be an industry standard.

Your browser is probably set to accept cookies. However, if you would prefer not to receive cookies, you can alter the configuration of your browser to refuse cookies. If you choose to have your browser refuse cookies, it is possible that some areas of our site will not function properly when you view them.

How we use your contact information.

We use your contact information to send you updates about ABTA activities, brain tumor research, fundraising information, and notification of brain tumor-related events and information that may be of interest to you. At any time you may choose not to receive these mailings. Instructions for stopping e-mail notices are included in each of our messages or you can call us at 800-886-2282 and we will promptly honor your request. Registered users of our web site are able to opt-out of these mailings at the time they register, and can change that choice online at any time. 
Donations made at our web site using our online Donation Form and other forms transmitted through our website are secure.

Donations to the American Brain Tumor Association are transmitted using SSL (Secure Socket Layer) encryption. SSL is a proven coding system that lets your browser automatically encrypt, or scramble, data before you send it to us. We also protect account information by placing it on a secure portion of our Site that is only accessible by certain qualified employees of the American Brain Tumor Association. Unfortunately, however, no data transmission over the Internet is 100% secure. While we strive to protect your information, we cannot ensure or warrant the security of such information. 

Do not send personal information via e-mail.

"E-mail" by its very nature is not secure. Please do not send us any personal information in your e-mail that you would be uncomfortable sharing with others. Know that e-mail can be intercepted and that a copy of your message may be stored on the computer you are using.

The electronic messages you receive from us may include “Tell-A-Friend” options.

If a user elects to use our referral service for informing a friend about our site, we do not collect or save the friend's name or e-mail address.

How to correct, update or verify your contact information.

To correct, update, or verify your contact information, or if you wish to stop receiving information from ABTA, please call us at (800) 886-2282 or email us at We will promptly honor your request.

About the links and resources at our site.

Several sections of our site link to other places on the Internet. We believe the information or services at these sites are of significant interest to brain tumor patients, families or the neuro-oncology community. If you have concerns about their privacy policies or questions about their security, please contact those providers directly. We do not assume responsibility for the practices or content of any web site which links to, or from, our site.

We do not accept banner advertisements at our site.

ABTA does not accept paid advertising. However, unrestricted educational grants in support of our web site, patient and family programs or sponsorship of ABTA events is important. This support enables us to earmark the majority of ABTA funds for brain tumor research. Grantors and event sponsors will be clearly labeled as such, and their acknowledgment may be accompanied by a logo linked back to their web site. Please note that grantors and sponsors do not have the ability to influence ABTA content.

Regarding the Use of ABTA’s Connections Online Community

At our site you will find a link to our online social networking community, Connections.  In order to access all the services of our online community you will first need to complete a registration form including your name and email address.  You may choose to provide us with additional personal information to enhance your experience in our community.  If you currently have a user name for our ABTA web site,, your log in information for our Connections community is the same.

Connections offers interactive tools that allow users the ability to upload information for public consumption. Users can share experiences, photos, and videos with others.  Please be advised that discussion boards, groups and blogs can be seen by others.  Depending on the privacy settings you select, others can view your profile, photos, videos and postings, even when you are not logged in. Please exercise caution when posting information or providing information about yourself or others, especially contact information such as street address, phone numbers or email addresses. Connections is intended for adults 18 and over.

You understand and agree that ABTA will intermittently review the postings and may edit, delete or remove (without notice) any content or postings at our discretion for any reason. Postings may not reflect ABTA opinions, and are not to be construed as medical advice. ABTA may also at its sole discretion limit access to the Connections Community and/or terminate access of any users who do not abide by our policies.

We reserve the right, at our sole discretion, to change, modify, add, or delete portions of this policy at any time without further notice. If we do this, we will post the changes to this privacy policy at our Connections web site and will indicate the date these terms were last revised. Your continued use of our site after any such changes constitutes your acceptance of the new policy. If you do not agree to abide by these policies, do not use or access (or continue to use or access) the Connections Community. It is your responsibility to regularly check to determine if there have been changes to these terms and to review such changes.

Regarding the Use of Our Site by Children Under 13

We encourage our young visitors to spend time online supervised by a parent or guardian.

Our site is intended for adults. A children's section, ABTA Kids, is clearly marked for children. That section of our site does not give children a way to share personal information about themselves.

Because you can visit our site without disclosing any personal information, we do not know when a child is viewing our site. Like any web site, we offer e-mail ability into our office and links to other sites. We encourage parents to speak with their children about the personal information they share online and privacy issues involving use of the Internet.

Protecting the privacy of the very young is especially important. For that reason, we adhere to the 1998 Children’s Online Privacy Protection Act (COPPA). (For more information, visit the Federal Trade Commission’s COPPA site at

Children completing a Connections Pen Pal application require parental consent

Our Connections pen-pal program matches brain tumor patients, family members and caregivers to one another for mutual support. A form for joining the Connections Pen Pal program appears in the Care and Support section of the web site. Those under the age of 18 must have parental permission to participate.

Forward any questions regarding our privacy policy to: American Brain Tumor Association, 8550 W. Bryn Mawr Ave., Suite 550, Chicago, IL 60631;, or 800-886-2282.