Six years ago, our lives were forever changed when our youngest son, Carson, was diagnosed with a brain tumor (JPA-Juvenile Pilocytic Astrocytoma) at the ripe old age of nearly 3 years old. Following surgery and then 15 months of chemotherapy, we enjoyed nearly two years of a stable tumor and therefore, a stable life. In October 2015, Carson's tumor was identified as growing again so he went through another 12 months of weekly chemotherapy - ending in the fall of 2016. After almost two years off of treatment, he has just begun a new clinical trial of a MEK inhibitor. The large twice/day dose of medicine is not his favorite but he is tolerating it pretty well so far.
You can support our team by donating, joining, or coming out to walk or run with us on Oct 13 in St. Paul. Money raised by the BT5K will provide critical funding for brain tumor research and for supportive patient care.
Click on “Donate Now” (or join the team!) to donate safely and securely.
Your donation not only supports brain tumor patients and their families but it also supports the breakthrough research to improve, extend and ultimately save lives.
And remember, your donation is tax-deductible! You can learn more about the American Brain Tumor Association at www.abta.org. Thank you in advance for your support of my efforts on behalf of brain tumor patients like Carson, their families, and the researchers pursuing breakthroughs.
You can follow Carson's journey here: https://www.caringbridge.org/visit/carsongulliford