Each day, 500 people will be diagnosed with a brain tumor. To show my support, I will be participating in the American Brain Tumor Association's BT5K Breakthrough for Brain Tumors Run & Walk. Money raised by the BT5K will provide critical funding for brain tumor research and for supportive patient care.
You can support me in my efforts by making a donation to the American Brain Tumor Association.
Click on "Donate Now" to donate safely and securely.
Your donation not only supports brain tumor patients and their families but it also supports the breakthrough research to improve, extend and ultimately save lives.
And remember, your donation is tax-deductible! You can learn more about the American Brain Tumor Association at www.abta.org. Thank you in advance for your support of my efforts on behalf of brain tumor patients, their families, and the researchers pursuing the breakthroughs.
**Recently, my story began again**
Further below is how my story began way back in September, 2006. Please continue to read to check out my full journey. I am continuing to fight a glioblastoma with the help and support of my friends and family. I recently found an amazing neuro oncologist at the James at the Ohio State University. He and his team have brought us renewed hope and additional treatment options that weren’t available to me just several months prior...
My story continues; In July 2015, during a yearly checkup, it was found that my tumor has returned. I was placed on Temador , an oral chemotherapy that I had responded well to in the beginning. After a full year of treatment it was found that it was not working. In fact, several additional "spots" were found.
Lori and I visited the Cleveland Clinic for a treatment plan. I was placed and am currently taking another type of more aggressive oral chemo. I will have an MRI in mid January after 3 rounds to determine the next step. The Etoposide was ineffective as well.
May-June 2017: I am currently taking a high dosage of Claravis. After my first round, my MRI was stable. I am taking my second round and will have a follow up soon after the BT5K on June 3rd.
Last year's BT5K was an amazing experience! I never could have thought how so many friends and family could come forward with their generosity and support. I am getting an earlier start this year in hopes that we, together, can blast past last year's numbers and do even more amazing things this year.
I am honored to have been asked to join the sponsorship committee for this year's BT5K in Columbus, Ohio. So we need to make great things happen.
Let's all move forward into 2018 with love and support for one another. And look to the new year as a new beginning for bigger and better things to come.
Thanks to every one of my friends and family who care, love and support me and my family. I couldn't do it without you.
Two weeks after our wedding, I had a Gran Mal seizure in the parking lot while leaving to go home from work. This was also the day before Lori, my wife, and I were to travel to New Mexico for a reception given to us by my parents. My boss called Lori and told her what was happening. She happened to be a couple miles up the street at lunch with a friend. Lori rushed to my work and made it there in time to ride with me in the ambulance. Upon arrival at the ER, I was tested every which way to see what happened, after several hours, numerous CT scans and 8 staples in my head, the doctors came to the conclusion that I was fine and may have been dehydrated. They okayed me (if I felt up to it) to go to Albuquerque the next day. So, on to New Mexico Lori and I went. We enjoyed a wonderful week and reception with friends and family.When we arrived back in Dayton, we made an immediate follow-up appointment with our family doctor. I had several more tests including an MRI. Our doctor said that he and a radiologist saw what they thought to be bruising on my brain and wanted a second MRI to compare to. The second was taken a couple of weeks later, and showed no change in size or shape from the original...So, what all this comes down to is, I was diagnosed with a brain tumor! After a visit with a neuro surgeon in Dayton who gave me anitseizure medication and said he didn't want to operate and would rather "monitor" it for a while, I had a second controlled seizure (the medication took effect and I was fully aware of my surroundings, just unfocused and fidgity; a very strange feeling, believe me). Needless to say, Lori and I ended up back in the ER that evening. We were fortunate enough to have a doctor (I still wish I could remember his name to thank him) who told us about the Mayfield Clinic in Cincinatti. Lori and I did some research and called their office the next day. The nurse said over the phone that she would discuss my case with the doctor and call us back in a couple of days. Two hours later, she called back and said the doctor would take my case. Two days later, we had our consultation with Dr. Tew. He walked into the room and sat right between Lori and I introduced himself, and said, "So tell me about yourself. What makes you, you?" A completely different approach than what we had experienced previously! Dr. Tew was kind, gentle and geniune. We could tell that he was truly interested in me and Lori as people (not just another paycheck). We sat and talked for about an hour and he said from his and the "tumor board's" review, they thought that my tumor was slow growing and would not need to be removed right away, meaning we could enjoy the Holidays and get through them before having the surgery.We made an appointment for January 16th 2007 for the date of my surgery. My family came into town several days prior to be with us. Mom, dad, Shana and Tony were all here for the surgery. I spent a couple of days in intensive care in Cincinatti after the surgery and was then transferred to Miami Valley Hospital in Dayton for inpatient rehab. I spent a total of a month at MV learning to do basic things I once took for granted such as walk, use the restroom, dress, and even get in and out of bed on my own. I lost movement on my left side do to the surgery.I was fortunate enough to have mom able to be here with Lori and I for the entire time I was in the hospital. She was a blessing and an enormous help to say the very least.I then had another month in outpatient rehab followed by 32 radiation treatments and a year and a half of monthly, oral chemo.
When I think of that time in my life, I can't help but feel so amazingly lucky that things happened the way they did. The fact that 3 minutes later, I would have been driving home when my seizure occurred. The fact that Lori happened to be ten minutes up the road when it did occur and she was able to get there so quickly. My second "controlled" seizure ended up being a blessing because of the ER doctor (whose name I don't know but will always remember) who told us about the Mayfield Clinic. The oppurtunity to meet Dr. Tew and his wonderful staff gave us an experience that I will always remember with such thankfulness and indebtedness. Without him, I possibly would not be where, what, or who I am today. I can never thank him enough. Also, my family being able to be there with me during such a crazy and scary time was so extremely comforting, I don't think anyone of them realize.My mom spending a total of three months off and on helping with transportation and basic things around the house shows how truly dedicated to her family and incredibly strong she REALLY is!
_THIS PAST JULY (2015) DURING ONE OF MY YEARLY CHECKUPS, IT WAS FOUND THAT MY TUMOR HAS RETURNED. SO NOW, AFTER 8 YEARS, THE BATTLE IS BACK ON. I AM AGAIN ON TEMADOR (ORAL CHEMO) AND DOING VERY WELL. I FEEL VERY BLESSED TO BE HERE TODAY AND ABLE TO SHARE MY STORY WITH OTHERS. _
_BRAIN TUMOR AWARENESS IS OBVIOUSLY VERY NEAR AND DEAR TO MY HEART. IT MEANS THE WORLD TO ME TO BE PART OF SUCH AN IMPORTANT EVENT. WE WOULD LOVE FOR YOU TO JOIN US IN COLUMBUS FOR THE WALK, OR TO CONSIDER OFFERING A SMALL CONTRIBUTION TO A VERY WORTHY __CAUSE. THANK YOU SO MUCH. - ESTEVAN, LORI, AND GRAYSON_
***PLEASE FEEL FREE TO REACH OUT TO ME OR LORI IF YOU HAVE ANY QUESTIONS OR NEED ANY ADDITIONAL INFORMATION. THE ABOVE STORY FLOW IS A BIT COMPLICATED DO TO THE YEARLY UPDATES. BUT FACT IS; I AM DOING GREAT AND WAKE UP EVERY DAY FEELING HOPEFUL AND GRATEFUL TO BE SHARING THIS LIFE I HAVE WITH MY MOST AMAZING AND BEAUTIFUL FAMILY. ***