It’s that time of the year again…!!
We would like to invite you to celebrate with us!!!
On November 11, 2018, the American Brain Tumor Association’s (ABTA) annual 5K Run and Walk will be held again at Hudson River Park Pier 84 in NYC. It's a day of celebration and remembrance for all those individuals, families, caregivers, and friends affected by a brain tumor diagnosis.
My name is Sabine Schwab and I'm one of the 700,000 people living with a brain tumor in the United States.
I was diagnosed in 2014 with an Anaplastic Astrocytoma brain tumor, after experiencing a grand mal seizure. My baby girl was only 6 months old at the time.
I underwent open brain surgery, followed by 6 weeks of daily radiation treatment to my brain, and a full year of chemotherapy.
The year of chemo was a rollercoaster ride: I had good days and bad days, many ups and downs, many tears cried and milestones celebrated.
The tumor itself was about the size of a golf ball, located in my right frontal lobe. This is the part of the brain where the memory, problem solving, language, initiation, judgment, processing, impulse control, and social behavior resides. To this day, I still have impairments sourrounding some of the above mentioned cognitive functions.
Live goes on and I got used to my bad memory (and hope others did too ;-)) I learned how to live with the constant fear of a relapse, that is very likely for primary brain tumors. My faith and positive attitude are very helpful when it comes to dealing with this terminal illness.
I made the very difficult decision to quit my career and dedicate my life to my family, friends, and the (brain) cancer community. I raise awareness and funds, became a Stanford Medicine X ePatient in 2015, and joined the ABTA volunteer CommYOUnity and another cancer non-profit in 2016. As of April 2017, I am a proud member of the ABTA Volunteer Advisory Council.
It's the 4th year that I am part of the BT5K planning committee. My team is participating in this 5k to support me in my efforts. This year, we are proud to walk and run again under the team name "TEAM SABINE".
I'd be thrilled if you become part of it!!! As I stated above, it's a day filled with celebration and remembrance—not only for me, but for many, many other patients, friends, and families as well. Last year, a total of 2,000 people participated. There will be music, an inflatable brain, a kids zone, and much more. The location is beautiful, too—right next to the Intrepid museum on Pier 84 on the Hudson River!
I'd love to see you there—but even if you can't be at the walk/run the day of, please consider a donation to my team. Any contribution will make a difference in the life of a brain tumor patient! Unfortunately, loss is part of this new life, and I have seen too many friends lose their battle to this incurable disease. Your donation not only supports all brain tumor patients and their families by providing valuable information, support, and guidance, but it also supports the research to improve, extend, and ultimately save lives, including mine!!!
And remember, your donation is tax-deductible! You can learn more about the American Brain Tumor Association at www.abta.org.
If you have any questions, need more information or input, or want to talk in person, please do not hesitate to reach out to me. I'd be happy to talk some more about the cause near and dear to my heart.
Thank you in advance for your support on my behalf and on behalf of all brain tumor patients, their families, and the scientists pursuing the breakthroughs in brain tumor research.