Each day, 500 people will be diagnosed with a brain tumor. My day was November 28, 2017 and here's my story.
I had a grand mal seizure, never had a seizure before in my life until this one so boy was that scary for everyone but especially for my family who had to witness it, so 911 was called and I was taken to the hospital. A CT was done first and the doctor came in to tell us that I had a lesion on my brain. I very calmly stated, "do you mean I have a brain tumor?", and the ER doctor replied, yes. I was admitted so they could do a MRI to confirm and see how big it was. It was confirmed and it was big and was likely there for quite some time. I was referred to the Mayo Clinic to see Dr. DiNapoli, who is a neurosurgeon. He ordered a special MRI called a functional MRI because my tumor is located in the left frontal lobe very close to the motor strip. I had a craniotomy on January 17, 2018 to remove the tumor but he was only able to get about 70% of the tumor because the rest of it is located in an area that would have left me permantly paralyzed on my right side if he would have removed it all so he decided it would be best given my age and the type of tumor I have to leave it.
I have an Oligodendroglioma grade II which is a low grade glioma. In May of 2018, I started chemo. I did 12 months of oral chemo and finished in April of 2019. During the course, I would have monthly blood draws and check ups with the Neuro-oncologist to make sure my blood counts were ok and I could start the next cycle. I also would get MRI's every 3 months to check the progress of the tumor. During my treatment, my tumor acutally shrunk some!!
Now I am ready to get back to MY life!! I want to show this tumor who's boss so I am running in the Chicago Marathon!!
To show my support, I will be participating in the American Brain Tumor Association’s Team Breakthrough Endurance program. Money raised will provide critical funding for brain tumor research and for supportive patient care.
You can support me in my efforts by making a donation to the American Brain Tumor Association.
Click on “Donate Now” to donate safely and securely.
Your donation not only supports brain tumor patients and their families, but it also supports the breakthrough research to improve, extend and ultimately save lives.
And remember, your donation is tax-deductible! You can learn more about the American Brain Tumor Association at www.abta.org. Thank you in advance for your support of my efforts on behalf of brain tumor patients, their families, and the researchers pursuing the breakthroughs.